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Hello, I know you have a book coming out about CPAP for UARS, which is what I think I have had most of my life. I have had severe insomnia all my life. Also, I had severe LPRD, only at night when I sleep deeply. So a year ago, I started CPAP. Full face masks simply do not fit my face, too loose for my very narrow jaw, if I sleep deeply, they come off or leak massively. But I have been using nasal pillow masks for a year. CPAP has helped my LPRD, but only when I do not sleep too deeply. During times when my insomnia is better and I get enough sleep, I still choke on the stomach juices, even though there is no food in my stomach. I taught myself to keep my mouth closed while sleeping, but cannot form a complete seal with my tongue in the correct position because of a hole formed on the lower left side of my mouth because of 2 missing molars. I cannot get implants because of my jaw problems, not enough bone. I am a mess from medical mistakes. It started when I had orthodontics as a child to correct a large overbite. The dentist pulled out 6 of my teeth, so my mouth developed very small. At about 50, I was diagnosed with Osteopenia and given Fosamax. After 6 years, I had osteoporosis. It was discovered much later that I had a parathyroid adenoma and had it removed. My mildly high calcium flagged this condition for many years, but doctors refused to admit it. It was only when I wrote to Dr. Norman in Tampa that something was done about it. He said I never should have been put on Fosamax. In the meantime, Fosamax massively damaged my jaw. I had it wired for months. My husband is a doctor and he does not know what to make of all this.
I have had the help of a great forum, CPAP,TALK.com to make my therapy a success. However, it is just not helping completely. I still cannot sleep really deeply without getting LPR episodes. I can’t raise the pressure too much on my APAP machine because of mask leaks. I cannot use chin straps or soft cervical collars because I get pain in my jaw.
Do you think your new book can help me?
Sorry to hear.
My book is for people who are struggling with CPAP in general, and will be able to help most people but not all. If all else fails, then you have to consider other options. I describe these other options briefly but I have more in-depth explanations in my other articles and podcasts. Ultimately, I can’t give you specific advice without examining you in person.
My name is Simon Warner and I am a 42 year old male with serious sleep issues. I have been diagnosed with obstructive sleep apnea. I have a CPAP machine and have used both a nasal pillow mask and a full face mask. I have had the machine for years. I still have sleep issues. I have tried everything under the sun, from melatonin to 5HTP to teas to essential oils and nothing has helped. I average about 4 hours of sleep a night. That sleep is restless though and I wake up multiple times. The best I can sleep for is around 2 hours max before waking up. Most days I wake up early and cannot go back to sleep sometimes. I always need a nap by the afternoon. My head is foggy when I wake up and I also have a dry mouth. I am also having super vivid dreams, some normal and some nightmares. I feel awake during them and remember them the next day. I have anger/irritability/and moodiness from lack of sleep. I have a lack of energy. I experience memory issues and lack of concentration. I also have reflux and stomach issues – I always need an alka seltzer. Those are most of my symptoms. My only health issues are high blood pressure. I take Telmisa/HCTZ and Amplodine for my blood pressure daily. I also have to have TRT and my levels are tested every 6 months and average from 600-1000. I exercise at least 3 times a week. I’m not overweight and I eat healthy (currently following a low carb, low cal, high protein diet). I don’t smoke or use tobacco products, I drink wine/alcohol a few times a week moderately at most. No mental health issues. Does anyone have any suggestions and what a could be causing the machine not to work with my apnea? I’m thinking I may have insomnia also. Any suggestions on what I can try to help me get the sleep I need because I am at a loss of what to do???
Thanks in advance!
I am very much desperate for some advice or help. My family has, for several years, told me that I snored very badly. I was never really tired during the day but my wife says that fatigue has been building with me over time. About four months ago I had a terrible acid reflux event. Awful. Upper GI was negative, prescribed PPI and H2 – nothing worked. My symptoms were not only heartburn but tiredness and basically the feeling that I had the flu every day: sinus congestions, tired, depressed, head fog, fever (but not actually), rhinitis (very sensitive to perfume). I saw a sleep specialist and had a home and lab study. Diagnosed with severe sleep apnea including central sleep apnea. Im technically overweight but I’m 6′ 200 with 16 1/2 neck – not obese but could lose a few lb’s. I am now on CPAP 8-12. My numerical results are good. 7-8 hr, <5 events/hr, no leaks. My heartburn has improved but I still feel sick – still feel like I have the flu or a cold. Its very frustrating and impacting my work. Energy has improved overall but when I feel sick, I'm also exhausted. What should I do??
Sorry to hear about your health issues. Unfortunately, without examining you in person, I can’t give you any medical recommendations. This blog is for general information only and can’t be relied on for medical advice.